@article{article, title = {{Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions}}, publisher = {{BioMed Central}}, url = {{https://eprints.whiterose.ac.uk/184277/ }}, year = {{2021}}, month = {{11}}, author = {{Javaid MK and Mordenti M and Boarini M and Sangiorgi L and Westerheim I and Alves I and Skarberg RT and Appelman-Dijkstra NM and Grasemann C}}, doi = {{10.1186/s13023-021-02069-9}}, volume = {{16}}, journal = {{Orphanet Journal of Rare Diseases}}, issue = {{1}}, note = {{Accessed on 2024/12/22}}}