@article{article, title  = {{The Challenges of Living with and Caring for a Child or Children Affected by Neuronal Ceroid Lipofuscinosis Type 2 Disease: In-Depth Family Surveys in the United Kingdom and Germany}},

 publisher = {{FapUNIFESP (SciELO)}},

 url = {{http://dx.doi.org/10.1590/2326-4594-jiems-2019-0013 }},

 year = {{2020}},

 month = {{1}},

 author = {{Schulz A and Jain M and Butt T and Ballinger R and Eliasson L and Macey J and Peasgood T and Olaye A and Terzakis-Snyder I-A and Dyck I and West A}},

 doi = {{10.1590/2326-4594-jiems-2019-0013}},

 volume = {{8}},

 journal = {{Journal of Inborn Errors of Metabolism and Screening}},

 note = {{Accessed on 2024/12/22}}}